The 20 Best Koolen De Vries Syndrome Doctors Near Me in Fort Worth, TX

Find the Top Koolen De Vries Syndrome Experts and Specialists

The 20 Best Koolen De Vries Syndrome Doctors near Fort Worth, TX

Last Updated: 02/22/2026

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MediFind found 28 doctor with experience in Koolen De Vries Syndrome near Fort Worth, TX. Of these, 27 are Experienced and 1 are Advanced.

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28 providers found
    Timothy Hadden
    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology
    Experienced in Koolen De Vries Syndrome
    Interventional Cardiology | Cardiology

    University Of Texas Southwestern Medical Center At Dallas

    600 S Main St, 
    Fort Worth, TX 
     (1.2 miles away)
    Languages Spoken:
    English
    Offers Telehealth

    Timothy Hadden, M.D., is originally from Lawton, Okla. He received his medical degree from the University of Oklahoma in Norman and completed an internal medicine residency at Vanderbilt University in Nashville. He received his general cardiology training at the Texas Heart Institute/Baylor program in Houston, and stayed an additional year to receive formal training in coronary and peripheral vascular intervention.Hadden is board-certified in internal medicine, cardiovascular diseases and interventional cardiology. He is a Fellow of the American College of Cardiology and Society of Coronary Angiography and Interventions.He is married and has three children and two dogs. He places a high priority on his family, and is active in the local ministries of McKinney Bible Church, Bible Study Fellowship, and Young Life. Dr. Hadden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Angina, Atherosclerosis, Coronary Heart Disease, Angioplasty, and Heart Bypass Surgery.

    Scott M. Pilgrim
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics

    Cook Children's Heart Center

    1500 Cooper St, Third Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Scott Pilgrim is a Pediatrics specialist and a Pediatric Cardiologist in Fort Worth, Texas. Dr. Pilgrim is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Partial Atrioventricular Canal, Endocardial Cushion Defect, and Atrioventricular Septal Defect.

    Diana Carrasco
    Experienced in Koolen De Vries Syndrome
    Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English, Spanish

    Diana Carrasco is a Medical Genetics provider in Fort Worth, Texas. Dr. Carrasco is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Mosaic Trisomy 7, Trisomy 3 Mosaicism, Trisomy 14 Mosaicism, and Trisomy 12 Mosaicism.

    Learn about our expert tiers
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics

    Cook Children's Physician Network - Genetics

    Fort Worth, TX 
     (0.3 miles away)
    Languages Spoken:
    English

    Mary Kukolich is a Medical Genetics specialist and a Pediatrics provider in Fort Worth, Texas. Dr. Kukolich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Micrognathia, 3MC Syndrome, Stickler Syndrome, and Coffin-Lowry Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Pediatrix Medical Group

    801 7th Ave, 
    Fort Worth, TX 
     (1.4 miles away)
    Languages Spoken:
    English

    Yvette Johnson is a Pediatrics provider in Fort Worth, Texas. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Atresia of Small Intestine, Gastroschisis, Diaphragmatic Hernia, and Patent Ductus Arteriosus.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cook Children's Neurosciences

    1500 Cooper St, 4th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Stephanie Acord is a Neurologist in Fort Worth, Texas. Dr. Acord is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Andersen-Tawil Syndrome, Thyrotoxic Periodic Paralysis, Hypokalemic Periodic Paralysis, and Deep Brain Stimulation.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cook Children's Neurosciences

    1500 Cooper St, 4th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Dave Shahani is a Neurologist in Fort Worth, Texas. Dr. Shahani is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Lennox-Gastaut Syndrome (LGS), Seizures, Memory Loss, and Benign Rolandic Epilepsy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cook Children's ENT Clinic

    1500 Cooper St, 6th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Michelle Marcincuk is an Otolaryngologist in Fort Worth, Texas. Dr. Marcincuk is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hearing Loss, Enlarged Adenoids, Otitis, and Laryngomalacia.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics

    Cook Children's Heart Center

    1500 Cooper St, Third Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English, Hebrew, Spanish

    Corey Mandel is a Pediatrics specialist and a Pediatric Cardiologist in Fort Worth, Texas. Dr. Mandel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Patent Ductus Arteriosus, Ventricular Septal Defects, Perrault Syndrome, and HNRNPH2-Related Disorder.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cook Children's ENT Clinic

    1500 Cooper St, 6th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Patricia Purcell is an Otolaryngologist in Fort Worth, Texas. Dr. Purcell is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hearing Loss, Infant Hearing Loss, Laryngomalacia, Adenoidectomy, and Endoscopy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology
    Experienced in Koolen De Vries Syndrome
    Pediatric Otolaryngology

    Cook Children's ENT Clinic

    1500 Cooper St, 6th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Allison Chisholm is a Pediatric Otolaryngologist in Fort Worth, Texas. Dr. Chisholm is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hearing Loss, Tonsillitis, Enlarged Adenoids, Otitis, and Adenoidectomy.

    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Cardiology | Pediatrics

    Cook Children's Heart Center

    1500 Cooper St, Third Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    John Wilkes is a Pediatrics specialist and a Pediatric Cardiologist in Fort Worth, Texas. Dr. Wilkes is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Hypoplastic Left Heart Syndrome (HLHS), Congenital Heart Disease (CHD), Ventricular Septal Defects, and Heart Murmurs.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cook Children's Orthopedic Clinic

    1500 Cooper St, First Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Matthew Mayfield is an Orthopedics provider in Fort Worth, Texas. Dr. Mayfield is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Multiple Pterygium Syndrome X Linked, Popliteal Pterygium Syndrome, Multiple Pterygium Syndrome, Amniotic Band Syndrome, and Osteotomy.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cook Children's Neurosciences

    1500 Cooper St, 4th Fl, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Linh Tran is a Neurologist in Fort Worth, Texas. Dr. Tran is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Generalized Tonic-Clonic Seizure, Lennox-Gastaut Syndrome (LGS), and Genetic Epilepsy with Febrile Seizures Plus (GEFS+).

    Experienced in Koolen De Vries Syndrome
    Pediatrics | Medical Genetics
    Experienced in Koolen De Vries Syndrome
    Pediatrics | Medical Genetics

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Ryan Gates is a Pediatrics specialist and a Medical Genetics provider in Fort Worth, Texas. Dr. Gates is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Micrognathia, Von Gierke Disease, Very Long-Chain Acyl-CoA Dehydrogenase (VLCAD) Deficiency, and PIK3CA-Related Overgrowth Spectrum.

    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Medical Genetics | Pediatrics

    Cook Children's Genetics

    750 8th Ave, Ste 200, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Candace Gamble is a Medical Genetics specialist and a Pediatrics provider in Fort Worth, Texas. Dr. Gamble is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hypotonia, Achondroplasia, Smith-Magenis Syndrome, and Miller-Dieker Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology | Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatric Pulmonology | Pediatrics

    Cook Children's Physician Network

    901 Seventh Ave, Ste 420, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English, Arabic

    Sami Hadeed is a Pediatrics specialist and a Pediatric Pulmonologist in Fort Worth, Texas. Dr. Hadeed is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Stridor, Laryngomalacia, Velopharyngeal Insufficiency, and Micrognathia.

    Advanced in Koolen De Vries Syndrome
    Pediatric Pulmonology
    Advanced in Koolen De Vries Syndrome
    Pediatric Pulmonology

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Esra Caylan is a Pediatric Pulmonologist in Fort Worth, Texas. Dr. Caylan is rated as an Advanced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Duchenne Muscular Dystrophy, Cystic Fibrosis, Trisomy 13, and CHARGE Syndrome.

    Experienced in Koolen De Vries Syndrome
    Pediatrics
    Experienced in Koolen De Vries Syndrome
    Pediatrics

    Cook Children's Medical Center

    801 7th Ave, 
    Fort Worth, TX 
     (1.4 miles away)
    Languages Spoken:
    English

    Eron Linver is a Pediatrics provider in Fort Worth, Texas. Dr. Linver is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Hypoxia, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Pertussis, and Wildervanck Syndrome.

    Experienced in Koolen De Vries Syndrome
    Experienced in Koolen De Vries Syndrome

    Cook Childrens Dodson Surgery Center

    1500 Cooper St, 
    Fort Worth, TX 
     (1.5 miles away)
    Languages Spoken:
    English

    Kristen Taylor is a Physiatrist in Fort Worth, Texas. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Hydranencephaly, and Lissencephaly 2.

    Showing 1-20 of 28

    Last Updated: 02/22/2026

    What is the definition of Koolen De Vries Syndrome?

    Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

    When should I see a Koolen De Vries Syndrome doctor near Fort Worth, TX?

    There are various reasons why you may want to see a specialist, such as: 

    • Your primary care provider recommends it. 
    • Your condition requires expert knowledge and specialized care. 
    • Your symptoms persist or worsen despite treatment. 
    • You need specialized testing or procedures. 
    • You want a second opinion.  

    What should I consider when choosing a Koolen De Vries Syndrome doctor near Fort Worth, TX?

    It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

    How does MediFind rank Koolen De Vries Syndrome doctors near Fort Worth, TX?

    MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

    What types of insurance are accepted by Koolen De Vries Syndrome doctors near Fort Worth, TX?

    Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

    How can I book an appointment online with a Koolen De Vries Syndrome doctor near Fort Worth, TX?

    MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

    Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

    Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

    How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Fort Worth, TX?

    Prepare for your appointment by gathering the following items: 

    • Copies of medical records (dating back at least one year) 
    • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
    • Family history of disease 
    • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
    • Allergies to medications, food, latex, insects, etc.  
    • List of questions and concerns 
    • Your insurance card 

    You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

    What questions should I ask my Koolen De Vries Syndrome doctor?

    Here are some sample questions: 

    • Can you explain in simple terms what this condition is and how it’s treated? 
    • What symptoms or side effects should I watch for? 
    • What tests will be involved, and when can I expect results? 
    • Are there other specialists I need to see? 
    • What’s the best way to reach you if I have follow-up questions? 

    How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

    MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

    MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

    Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Fort Worth, TX?

    Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

    Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

    Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

    Reviewed on: 11/11/24  

    By: MediFind Medical Staff 

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