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    Last Updated: 10/30/2025

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    MediFind found 33 doctor with experience in Koolen De Vries Syndrome near Fort Worth, TX. Of these, 33 are Experienced.

    Location
    LocationClose
    33 providers found
      Experienced in Koolen De Vries Syndrome
      Otolaryngology
      Experienced in Koolen De Vries Syndrome
      Otolaryngology

      University Of Texas Southwestern Medical Center At Dallas

      600 S Main St, 
      Fort Worth, TX 
       (1.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Joe Kutz is an Otolaryngologist in Fort Worth, Texas. Dr. Kutz is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Acoustic Neuroma, Schwannoma, Cholesteatoma, Mastoidectomy, and Myringotomy.

      Experienced in Koolen De Vries Syndrome
      Interventional Cardiology | Cardiology
      Experienced in Koolen De Vries Syndrome
      Interventional Cardiology | Cardiology

      University Of Texas Southwestern Medical Center At Dallas

      600 S Main St, 
      Fort Worth, TX 
       (1.2 miles away)
      Languages Spoken:
      English

      Timothy Hadden is an Interventional Cardiologist and a Cardiologist in Fort Worth, Texas. Dr. Hadden is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Angina, Atherosclerosis, Coronary Heart Disease, Angioplasty, and Heart Bypass Surgery.

      What does Elite, Distinguished, Advanced, Experienced mean?
      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      University Of Texas Southwestern Medical Center At Dallas

      600 S Main St, 
      Fort Worth, TX 
       (1.2 miles away)
      Languages Spoken:
      English
      Offers Telehealth

      Jack O'brien is a Dermatologist in Fort Worth, Texas. Dr. O'brien is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Localized Scleroderma, Hidradenitis Suppurativa, Cutaneous Lupus Erythematosus (CLE), and Scleroderma.

      Learn about our expert tiers
      Experienced in Koolen De Vries Syndrome
      Hospital Medicine | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Hospital Medicine | Pediatrics
      801 7th Ave, 
      Fort Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English

      Eron Linver is a Hospital Medicine specialist and a Pediatrics provider in Fort Worth, Texas. Dr. Linver is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Cerebral Hypoxia, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Pertussis, and Early Infantile Epileptic Encephalopathy.

      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine

      Cook Childrens Physician Network

      801 7th Ave, 
      Fort Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Sami Hadeed is a Pediatric Pulmonologist and a Pediatrics provider in Fort Worth, Texas. Dr. Hadeed is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Stridor, Laryngomalacia, Velopharyngeal Insufficiency, and Micrognathia. Dr. Hadeed is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      801 7th Ave, 
      Fort Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Diana Carrasco is a Medical Genetics specialist and a Pediatrics provider in Fort Worth, Texas. Dr. Carrasco is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Trisomy 2 Mosaicism, Trisomy 14 Mosaicism, Mosaic Trisomy 7, and Trisomy 3 Mosaicism. Dr. Carrasco is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Experienced in Koolen De Vries Syndrome

      Cook Childrens Physician Network

      801 7th Ave, 
      Fort Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Michelle Marcincuk is an Otolaryngologist in Fort Worth, Texas. Dr. Marcincuk is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Hearing Loss, Enlarged Adenoids, Otitis, and Laryngomalacia. Dr. Marcincuk is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics | Neurology

      Cook Childrens Physician Network

      801 7th Ave, 
      Ft Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Stephanie Acord is a Pediatric Neurologist and a Pediatrics provider in Ft Worth, Texas. Dr. Acord is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Andersen-Tawil Syndrome, Hypokalemic Periodic Paralysis, Thyrotoxic Periodic Paralysis, and Deep Brain Stimulation. Dr. Acord is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Medical Genetics | Pediatrics

      Cook Childrens Physician Network

      801 7th Ave, 
      Ft Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Mary Kukolich is a Medical Genetics specialist and a Pediatrics provider in Ft Worth, Texas. Dr. Kukolich is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Micrognathia, Stickler Syndrome, Kabuki Syndrome, and 3MC Syndrome. Dr. Kukolich is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Cardiology | Pediatrics | Pediatric Cardiology
      Experienced in Koolen De Vries Syndrome
      Cardiology | Pediatrics | Pediatric Cardiology

      Cook Childrens Physician Network

      801 7th Ave, 
      Ft Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Scott Pilgrim is a Cardiologist and a Pediatrics provider in Ft Worth, Texas. Dr. Pilgrim is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Tetralogy of Fallot, Atrioventricular Septal Defect, Endocardial Cushion Defect, and Partial Atrioventricular Canal. Dr. Pilgrim is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology
      Experienced in Koolen De Vries Syndrome
      Pediatric Cardiology | Cardiology

      Cook Childrens Physician Network

      801 7th Ave, 
      Ft Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Corey Mandel is a Pediatric Cardiologist and a Cardiologist in Ft Worth, Texas. Dr. Mandel is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Patent Ductus Arteriosus, Ventricular Septal Defects, Perrault Syndrome, and HNRNPH2-Related Disorder. Dr. Mandel is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics | Pediatrics | Orthopedics
      Experienced in Koolen De Vries Syndrome
      Pediatric Orthopedics | Pediatrics | Orthopedics

      Cook Childrens Physician Network

      801 7th Ave, 
      Ft Worth, TX 
       (1.4 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Matthew Mayfield is a Pediatric Orthopedics specialist and a Pediatrics provider in Ft Worth, Texas. Dr. Mayfield is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Poland Syndrome, Amniotic Band Syndrome, Multiple Pterygium Syndrome, Multiple Pterygium Syndrome X Linked, and Osteotomy. Dr. Mayfield is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Physiatry | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Physiatry | Pediatrics

      Cook Childrens Physician Network

      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Kristen Taylor is a Physiatrist and a Pediatrics provider in Fort Worth, Texas. Dr. Taylor is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Cerebral Palsy, Moebius Syndrome, Lissencephaly 2, and Lissencephaly 1. Dr. Taylor is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology

      Cook Childrens Physician Network

      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English

      Sherief Mansi is a Pediatric Gastroenterologist in Fort Worth, Texas. Dr. Mansi is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Bowel Incontinence, Fecal Impaction, Encopresis, Gastroparesis, and Sacral Nerve Stimulation.

      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      Experienced in Koolen De Vries Syndrome
      Pediatric Pulmonology | Pediatrics | Pulmonary Medicine
      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Aarusha Das is a Pediatric Pulmonologist and a Pediatrics provider in Fort Worth, Texas. Dr. Das is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Perlman Syndrome, Marshall-Smith Syndrome, Simpson-Golabi-Behmel Syndrome, and Cantu Syndrome. Dr. Das is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Neurology
      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Dave Shahani is a Pediatric Neurologist and a Neurologist in Fort Worth, Texas. Dr. Shahani is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Lennox-Gastaut Syndrome (LGS), Seizures, Memory Loss, and Benign Rolandic Epilepsy. Dr. Shahani is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology
      Experienced in Koolen De Vries Syndrome
      Pediatric Gastroenterology

      Cook Childrens Physician Network

      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English

      Nicholas Ogunmola is a Pediatric Gastroenterologist in Fort Worth, Texas. Dr. Ogunmola is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. His top areas of expertise are Encopresis, Bowel Incontinence, Gastroesophageal Reflux Disease (GERD), and Celiac Disease.

      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology
      Experienced in Koolen De Vries Syndrome
      Pediatric Hematology Oncology
      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English

      Kelly Vallance is a Pediatric Hematologist Oncology provider in Fort Worth, Texas. Dr. Vallance is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Histiocytosis, Reticulohistiocytoma, Langerhans Cell Histiocytosis, Bone Marrow Aspiration, and Nephrectomy.

      Experienced in Koolen De Vries Syndrome
      Neonatology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Neonatology | Pediatrics
      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Yvette Johnson is a Neonatologist and a Pediatrics provider in Fort Worth, Texas. Dr. Johnson is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Atresia of Small Intestine, Gastroschisis, Diaphragmatic Hernia, and Patent Ductus Arteriosus. Dr. Johnson is currently accepting new patients.

      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics
      Experienced in Koolen De Vries Syndrome
      Pediatric Neurology | Pediatrics
      1500 Cooper St, 
      Fort Worth, TX 
       (1.5 miles away)
      Languages Spoken:
      English
      Accepting New Patients

      Takijah Heard is a Pediatric Neurologist and a Pediatrics provider in Fort Worth, Texas. Dr. Heard is rated as an Experienced provider by MediFind in the treatment of Koolen De Vries Syndrome. Her top areas of expertise are Seizures, Genetic Epilepsy with Febrile Seizures Plus (GEFS+), Generalized Tonic-Clonic Seizure, and Epilepsy Juvenile Absence. Dr. Heard is currently accepting new patients.

      Showing 1-20 of 33

      Last Updated: 10/30/2025

      What is the definition of Koolen De Vries Syndrome?

      Koolen de Vries syndrome is a disorder characterized by developmental delay, mild to moderate intellectual disability, congenital malformations, and behavioral features. Other problems include weak muscle tone (hypotonia) in childhood, recurrent seizures (epilepsy), and distinctive facial features. Males with Koolen de Vries syndrome often have undescended testes (cryptorchidism). Other symptoms may include defects in the walls between the chambers of the heart (septal defects) or other heart defects, kidney problems, and skeletal anomalies such as foot deformities. It is caused by genetic changes in the KANSL1 gene, or by the loss of a small amount of genetic material in chromosome 17 that includes the KANSL1 gene (chromosome 17 q21.31 microdeletion). Inheritance is autosomal dominant.

      When should I see a Koolen De Vries Syndrome doctor near Fort Worth, TX?

      There are various reasons why you may want to see a specialist, such as: 

      • Your primary care provider recommends it. 
      • Your condition requires expert knowledge and specialized care. 
      • Your symptoms persist or worsen despite treatment. 
      • You need specialized testing or procedures. 
      • You want a second opinion.  

      What should I consider when choosing a Koolen De Vries Syndrome doctor near Fort Worth, TX?

      It’s important to see a provider with expertise in your specific condition. Each provider profile in MediFind’s doctor database includes information on which conditions they treat, years of experience, research contributions, languages spoken, insurance plans accepted, and more.  

      How does MediFind rank Koolen De Vries Syndrome doctors near Fort Worth, TX?

      MediFind’s rankings are based on a variety of data sources, such as the number of articles a doctor has published in medical journals, participation in clinical trials and industry conferences, as well as the number of patients that provider sees for a given condition. Note that MediFind’s provider database is not based on user reviews, and providers do not pay to be included in the database. 

      What types of insurance are accepted by Koolen De Vries Syndrome doctors near Fort Worth, TX?

      Most profiles in MediFind’s doctor database include a list of insurance plans accepted by that provider. However, it’s a good idea to contact the provider’s office to make sure they still accept your insurance, then doublecheck by contacting your insurance plan to confirm they’re in network. 

      How can I book an appointment online with a Koolen De Vries Syndrome doctor near Fort Worth, TX?

      MediFind offers direct scheduling for certain providers using the “Request Appointment” button on that provider’s profile. If the schedule option is not available for a provider, tap the red “Show Phone Number” button on their profile to get their contact information. If you prefer to find providers who offer online scheduling, select “Schedules online” under the “Availability” category of the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. 

      Why is it important to get a second opinion from a different Koolen De Vries Syndrome doctor?

      Second opinions are an opportunity to confirm a diagnosis and its root cause, learn about alternative treatment options, or simply gain peace of mind. Many people, especially those with serious diagnoses, get second opinions so they can understand all their options and make informed decisions, so don’t hesitate to get one if you have any doubts or need more information or clarification regarding your care. Note that some insurance plans require second opinions, while others don’t cover second opinions, so be sure to confirm with your insurance provider first.   

      How can I prepare for my appointment with a Koolen De Vries Syndrome doctor near Fort Worth, TX?

      Prepare for your appointment by gathering the following items: 

      • Copies of medical records (dating back at least one year) 
      • Your medical history, including illnesses, medical conditions, surgeries, and other doctors you see 
      • Family history of disease 
      • List of current prescription drugs, over-the-counter medicines, vitamins, and herbal remedies or supplements including names and doses 
      • Allergies to medications, food, latex, insects, etc.  
      • List of questions and concerns 
      • Your insurance card 

      You might also contact the provider’s office to see if they offer transportation or childcare services or if you’re allowed to bring a loved one for support or to take notes during your visit. 

      What questions should I ask my Koolen De Vries Syndrome doctor?

      Here are some sample questions: 

      • Can you explain in simple terms what this condition is and how it’s treated? 
      • What symptoms or side effects should I watch for? 
      • What tests will be involved, and when can I expect results? 
      • Are there other specialists I need to see? 
      • What’s the best way to reach you if I have follow-up questions? 

      How can I learn about the latest clinical trials and research advances my Koolen De Vries Syndrome doctor may know about?

      MediFind’s Clinical Trials tool asks you a series of questions to help you narrow down your search by health condition, age, gender, location, how far you’re willing to travel, and more. Each question you answer filters down the number of trials until you find the ones that are most relevant to you. 

      MediFind’s Latest Advances tool features summaries of recent articles published in medical journals. We use cutting-edge technology to scour medical publication databases for the latest research advancements on any given condition, then we simplify this information in a way that’s useful and easy to understand. 

      Can I filter my search to show male or female Koolen De Vries Syndrome doctors near Fort Worth, TX?

      Look for the filter feature on the left side of the Koolen De Vries Syndrome doctor search results page. Select “Female” or “Male” under the “Gender” category to search for female or male providers exclusively. If the “Any” option is selected, it will pull results for both male and female providers. 

      Can I filter my search to find a Koolen De Vries Syndrome doctor that offers video calls?

      Look for the filter feature on the left-side of the Koolen De Vries Syndrome doctor search results page. Select “Offers telehealth visits” under the Availability category to search for providers who offer virtual appointments (video calls). 

      Reviewed on: 11/11/24  

      By: MediFind Medical Staff 

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